Q: Why do you do this work?
A: I do this work because I wish I had had someone who helped me when my child was young. It is hard to parent a child who struggles, it can be isolating. To have had someone who understood the types of things that I was going through would have been invaluable. As a parent of a child with special needs, I did not have a lot of natural supports, and I want to be able to fill this need for others.
Q: What can you bring to clients/families that is unique to you?
A: I can bring a different level of empathy because I have been there before. It’s one thing to give advice and connect someone with resources, but it’s another thing altogether to be able to connect based on shared experience. I can also give a behind the scenes look at services and options because I have accessed many of them myself.
“I can bring a different level of empathy because I have been there before.” – Julie P.
Q: What is one thing you want clients/families to know about your role?
A: My role is unique. I can do more to support and educate parents from a perspective of someone who has faced similar challenges. As a parent, the struggle continues even though my daughter is now over 18 years old.
Q: What are some examples of things you would do with a client/family during a typical meeting?
A: I am lucky to be able to do a wide variety of things in this role. For example, I spend a lot of time helping families prepare for meetings like IEPs or Family Team Meetings. I help families learn what to expect when interacting with the different systems like the courts, Child Protective Services, schools, and evaluations.
I role model parenting skills and can help talk parents through difficult situations. I also work with families to explore and encourage self-care. As caregivers, we are always thinking about what is best for those in our care and sometimes we forget to care for ourselves. I even practice self-care with clients by having a cup of tea and just talking.
Q: What is your favorite part about being in this role?
A: By far my favorite part is seeing those lightbulb moments. Those moments of growth when a person makes a new connection or sees a new truth. I love when a caregiver is able to see the impact of their behaviors and can successfully use their own behaviors and reactions to change the child’s behavior.
Q: If you could have any superpower, what would it be and why?
A: I am a bit of a sci-fi geek so I would love to be able to travel to other dimensions. It would be interesting to see and learn to understand a world in a different way.
